I have the suicide disease. The worse, TN2 version. That is not a sly term for mental illness, it’s a nerve disorder that has pain so great that people kill themselves rather than face yet another day of it. I am rarely below 3 on the 1-10 pain scale (at 4 right now) and I’ve reached 10 more times than I can count. This is with medication keeping it at the level where I can function.
I am such a bad judge of pain that the trauma from my not realizing for half a week that I had kidney stones and not taking any painkillers and then being stuck first in a clinic and then the ER for 14 hours writing in agony until they finally decided I did, in fact, have kidney stones and gave me some fentanyl, caused severe trauma and gave me an eating disorder called ARFID, unrelated to body image issues, and I have not eaten solid food in a year and a half.
Explains a lot, doesn’t it?
https://arizonapain.com/trigeminal-neuralgia-suicide-disease/
https://en.wikipedia.org/wiki/Avoidant/restrictive_food_intake_disorder
Hey, you asked.
P.S. If you try to give me medical advice over the internet, I may just block you. I am so fucking sick of that. And no, “I know you said you didn’t want medical advice, but…” does not count as a way around that. And I am fucking sick of having to say that and having people ignore it too.
I am impressed with you.
Thank you.
Damn. You know flying squid, I’ve always looked up to you around here. I see you in a lot of posts and comments around and didn’t realize you are in agony for most of the time.
Yeah, gotta love it.
I wondered how things were for you. I’m so sorry. I do know of a new treatment for trigeminal nerve stuff simply because I work in neuro I can tell you about if you want but I most certainly won’t give you advice. I just know someone who is using it and it’s new.
I appreciate it, but I have good people I am working with.
Ok all good. Hope you get some relief soon.
Thanks.
I know you said no advice, but have you tried jerking off a bunch?
Blocked so I can go look at porn uninterrupted.
Damn, so sorry you’re having to go through this. May the days be kind to you, friend.
Thank you.
Damn, that blows. Thanks for sharing, I didn’t know that was a thing.
I’m here to try something different… Instead of recommending a medical thing, how about you go on https://loops.video/ and share it with the rest of the world?
Shit, that’s some crazy symptoms! Fight on!
I actually did make a video about it once which has helped others, so I’m glad of that. But I don’t want to doxx myself and link to it.
Sorry to read that. But in some way I am almost relieved that you seem to finally know what caused your insanely severe case of ARFID. I remember when you were posting about your time at the Mayo clinic and the awful mismanagement there and was very sad and disappointed (not by you) that you were bombarded with enough armchair diagnostics to stop updating about your case.
When did you get diagnosed with TN2? And how long was the gap between the kidney stones and your last bite, if I may ask?
Thanks. I don’t really feel relieved by it, mainly because it’s kind of irrelevant to the future, but it is what makes the most sense and it’s better than having no idea.
When did you get diagnosed with TN2?
I think about 10 years ago. Maybe 11 now. It might be genetic because my dad had TN1. But he got it in his 70s. It usually manifests itself at that age. I was in my late 30s.
And how long was the gap between the kidney stones and your last bite, if I may ask?
That’s kind of complicated. A few weeks after it happened (January 2023) I started dry heaving every morning. That has been almost daily for me. Occasionally more than once. Then that March, I had this issue for about six weeks and then I was fine again until August. And other than at the Mayo Clinic when they totally numbed my mouth with a lidocaine-based compound, when I was able to manage a couple of bites of egg salad, that was the last time I had truly solid food. I’m also the smelling equivalent of a supertaster. I can smell cleaning fluid inside stores from when the custodians mopped the day before.
Working with a psychiatrist and doing RO DBT therapy, I am at a place where I can eat pretty much anything if I don’t have to chew or use any utensils and I have conditioned myself to just deal with the smells even if they are awful. I’m even able to cook for my kid now.
So I am in a much better place than I was even six months ago.
That’s a raw deal. I always thought a 1-10 pain scale was a dumb Idea. Pain is pretty subjective and someone who hasn’t experienced severe pain doesn’t really have a way to understand what constitutes a 10. (I would answer differently before and after my cycling accident for example) Personally I think that setting the scale as 1-10 where breaking a leg is a 6 (or something) would be more diagnostically relevant. I trust your judgement, although what you call a 4 would probably be most people’s 8.
That must be the toughest condition I read about in a long while. It’s amazing that you kept going. It’s also amazing that you decided to share this!
Thanks. I have definitely had my very, very low points, but you just try to keep going when you can until you have no reason to do it anymore…
My eye doctor murdered his boss’s wife and waited on the couch beside her corpse for him to get home. He got beaten the shit out of before he could kill his boss and the cops arrested him shortly after the beating.
My orthodontist had been high school band buddies with my parents, so when I needed braces 6 used him.
A few years later, his wife suspected him of cheating, so she hired a PI firm to follow him. They made the very stupid decision of telling her her was cheating on her in real time and where.
With her stepdaughter (his child) in the car, she drove to the hotel, confronted him, then ran over him 3 times. It was national news, and she got out of prison a few years ago.
Omigod. Is there a reason why?
I’ve had bosses. I’m not saying it’s OK, or anything, it’s not. Obviously double homicide is horrible. I’m just saying, I get where he’s coming from.
Welcome to the list…
If I’m not already on it, it’s a pretty useless list.
Didn’t see that coming
This is probanly way too boring and mundane for this thread, but I can’t feel hunger or fullness. (Never had a doctor look at it because it doesn’t make my life worse)
My mom when I was a baby asked the doctor how much baby food I should be given after breastfeeding time was over. The doctor said “just give him enough, he will stop”. After many jars of food, my mom had to stop because I wouldn’t stop.
To this day I can feel my stomach expanding before I will stop. At my university all-you-can-eat cafeteria (back when I was super fit and tracked every calorie) I ate about 10kcal and didn’t feel full so I stopped. I also did a 21 day water (and salt+vitamins) fast without that much trouble (but my mouth would still water and I would still have taste cravings)
Fucks up my relationship with food though because I eat when I am bored, just eat whatever is in front of me without realizing it, or if I am busy I will just forget to eat.
As I said, probably not really unsettling or scary, but not a fun fact lol.
Neither can I anymore. No hunger, no thirst. I have an eating disorder that’s not related to body image called ARFID. Here’s my post about it in this thread: https://lemmy.world/comment/14558547
I think I have this to some degree. I never feel hungry/hangry if I haven’t eaten by specific times. I just eat because I’m bored and it kinda heats me up. I can go days without, I just don’t because of habit and because sugar and caffeine have effects that help me concentrate
I would think like Prader Willi syndrome but usually those children are intellectually delayed.
When a friend of mine was a little kid, someone drove past, jumped out of their car, and ran over and grabbed him trying to kidnap him.
He was just confused about what the guy was even doing, but grabbed onto a chain-link fence and wouldn’t let go, so the guy was yanking him and yelling at him to let go, but he was able to hold on. Eventually the guy gave up and ran back and sped away. While he was being yanked on the fence, he was worried because the ball he’d been playing with was rolling down the hill, and he was worried it would go somewhere he wouldn’t be able to find it and he would lose his ball.
When the guy left, he went and retrieved his ball, psyched that he was able to get it back. He thought no more about it and kept playing, and then later that day told his mom about what happened.
She lost her mind. For some reason, he thought she had also been worried about the ball, and he kept telling her he’d been able to get it back after, so it was all good.
I can’t find the statistic any more, but it was something like 80% of people who are kidnapped and are taken in the kidnapper’s car are killed. Like this kid’s situation, fight, scream, do everything possible to not be taken.
This is what I do every time and it always works
Wait, what do you mean every time?
They’re so fun to try and kidnap, I’ve given it a burl a few times, they gotta fucking tight grip tho, never been able to get em loose.
You mean killing the person you’ve just snatched into your car right?
Works like a charm
Was his parents separated? Most likely it would be dad with a restraining order or some other family trying to “get him back”.
Just a few
- a childhood friend and neighbour got killed by his mother, his sister managed to flee the scene and call the cops
- my elementary school’s director got arrested for paedophilia, he killed himself in his cell before getting judged
- my sister in law died in her sleep less than a meter away from me (a wall was between us still) and my partner and I were the ones to find her, I’ve had to call and tell her parents
I knew someone whose death was ruled a suicide. I also know their roommate wasn’t where they said they were the night it allegedly happened.
And that’s all I know.
I’ve been sick at home for a few days. I blew my nose into some toilet paper, checked, then tossed it in the toilet. Saw myself in the bathroom mirror and had snot all over my mustache.
Then it hit me. This isn’t the first time I’ve blown my nose with a mustache — it’s just the first time I’ve immediately looked in a mirror afterward.
Oh my god
out of all the disturbing facts in this thread this is the one I like the most
Yea it happens if you have facial hair unfortunately. Went for a meal with my family last night and drinks after. Got home and realised there was quite a bit of dried soup in my beard. I do normally check myself after eating in my phone camera but totally forgot. Made me glad I’ve already made an appointment with the barber to get it trimmed.
i notice that when im sick, it takes longer for me to get better if i have a mustache. Not that i walk around with snot hanging to it, i hope not. But i guess something sits there, and i breath it all day and stay sick.
When I was 13 I helped the local burnout mow lawns. He was late 20’s and hung out with us teenagers from the same block. Got us weed, bought us beer. The 16yo guys I looked up to were friends (?) with him, he’d hang in the backyard fort of the lead 16yo, and he basically ran the local lawn mowing cartel of all us kids. I wanted money and it was easy and fun, hangin’ with the boys. We shoveled walks in the winter.
One snowstorm morning he wasn’t at the fort where we’d meet so I volunteered to run across the street to his house. Knock. Knock loud. Try the door, he didn’t mind if we came in his basement entrance to his parent’s house. It’s dark, light on in the bathroom. 13yo me saw his first dead body that day; full bathtub with slit wrists and neck.
E: oh, reason for suicide seemed to be that he had a DUI wreck a couple months prior where a young girl (like 7 or 8) didn’t die but wouldn’t ever be the same… like couldn’t walk or brain damage or something. He couldn’t handle what he did, I guess.
Damn. You understood the assignment. Also, I was sure that story was going somewhere else horrifying.
What is a DUI wreck? Car accident and fleeing?
Driving under the influence. He was drunk and hit someone’s car. I don’t think there was any fleeing involved, he had broken bones and shit. Spent time in jail and was waiting on his trial out on bond.
Driving under the influence [of alcohol or other] and crashing I believe
I spent a year as a videographer for a local news station. Do not work such jobs if you don’t want to see dead bodies because, as I found out, you’re literally an ambulance chaser. One of the many reasons I only worked there for a year. And probably why I am now too squeamish to watch gory movies.
I’m just glad I’ve never seen anyone actually die. At least not yet.
I (aurally) witnessed a kindergartener get run over by her school bus. I was on a different bus and our bus drivers were talking over the radio, then there was this ungodly wailing from the other bus. The other bus driver just kept screaming “I killed her, I killed her”.
Turns out the little girl barely missed the bus, ran alongside it to catch up, tripped, and fell under the wheels of the bus.
Once we got to high school, students on the killing bus were offered counseling. I, not being on the killing bus, didn’t talk to anyone about it until I went to therapy decades later.
Yellow school buses freak me out still, for that and abuse reasons.
Omigod that’s awful.
Yeah, there’s also the confusion of not having literally seen or felt the kid being crushed, so chastising myself that it shouldn’t have been that traumatic. It took me years to accept that just hearing something can also be witnessing it.
My bus hit some poor unhoused guy last year. That was a terrible thump. Thankfully all he got was a head laceration.
I’m sorry and I’m glad he wasn’t majorly injured.
When I was a kid (18?), one night a friend of my friend called us to come give this drunken girl a ride. They said they were at a party and the guy took some time to babysit her and take her home but he couldn’t handle her anymore.
We went and picked her up and were going to take her wherever in the area she wanted to go as a solid for this guy. She got in the car and started berating us and trying to turn up the volume and complaining about the music. She said she had sucked dick and whatever other mess and wasn’t going to put up with our shit this evening. She was much more intoxicated than I thought she would be. She requested to be taken to her car and she started giving us directions. She said she was going to sleep it off in the car so her parents wouldn’t know. We planned to take her keys and come back later or something. We were honestly blindsided by how ridiculous everything got so quickly.
Turns out her car was parked at a local recycling center or something and when we pulled in there, there was a brand new Cadillac, lights came on car started. She said it was probably her grandpa. We let her out and started driving away so that they could figure it out, we wanted to be done. Grandpa didn’t even stop to let her in the car or get her in her own car or anything. He immediately started following us. He tailgated us all the way down the highway back to my friend’s house with his brights on. We drove normally but tried to concoct a plan. We pulled up the driveway at my friend’s place about 15 minutes later and he stops short a few car lengths into the driveway.
I kind of lost it at that point and walked down the driveway to ask him what the hell he was thinking and he steps out of the car standing behind the driver side door. As I come up to him to give him a piece of my mind he raises his hands and he has a pistol pointed right at me. I guess being young and full of adrenaline I absolutely went off on him yelling what the hell did he think he was doing pulling a gun on this we were just trying to give his granddaughter a ride we didn’t even really know her. I mean I got right up in his face. I can’t believe I did that in retrospect, I would never do that now. After I yelled at him he dropped his hands and looked confused. Said “What was I supposed to do?” I’ll never forget those words.He quickly got in his car and started to turn around. I tried to block his car so I could call the police but as I started to get on the phone he punched it and ran over my foot. Thankfully I moved to just enough to the side that it didn’t really do anything. Cops showed up later and the officer stood around for a while talking to us and getting statements. He said that we have to go down to the magistrate downtown to do anything about this.
We went there and the magistrate asked us a bunch of the same questions. He did some paperwork stuff and essentially concluded that the guy who pulled a gun on me had already come by and filed a report that we were threatening him and that the two conflicting statements would cancel each other out - nothing would happen to either of us. Come to find out later on that the man who pulled a gun on me was a retired police chief from the area, very well known, who owned a local car wash. He had a sketchy past and I guess this was just another day in the life of a police officer abusing power.
I look back and think what the hell was that girl doing? Was she actually being taking advantage of? Did the friend of a friend know that would happen so he set us up to take the fall for it? Was he the abuser? Was she just being sloppy and shitty and he didn’t want to get in trouble? How in the world did those things cancel each other out especially with no investigation into it. They couldn’t have. I’ll never forget that. I never talked to that idiot friend of a friend again and I never saw police officers the same either.
I’m aware your questions are rhetorical, but I’m going to answer them anyway. Your questions are just so spot on.
Was she actually being taking advantage of?
80/20
Did the friend of a friend know that would happen so he set us up to take the fall for it?
Maybe. It doesn’t have to be that Machiavellian. Maybe he didn’t know what to do and was just looking for an out. Not an excuse. Could be similar feelings whether he’s the abuser or relatively innocent.
How in the world did those things cancel each other out especially with no investigation into it.
Cops don’t like paperwork. Paperwork can mean accountability. If nothing’s written, they can’t get lectured for doing it wrong.
Not ever having closure for shit like this is ridiculously frustrating. This drunk lady came to my door once and lied that she was a friend of a friend but she was really upset and may possibly have been hit by her boyfriend because she had a big red mark on her cheek and started crying about him. So I had her call her mother to pick her up. Then my wife came home and we hid in the bedroom with the door closed while she and her mom had a huge yelling match about the boyfriend. Eventually they left and we never saw or heard from them again.
You’d think they would have at least left a thank you note.
I half expected this to end with jumper cables. Quite a ride, though.
Nothing personal, kid. Alternator’s out.
I had half of my face ripped off by a dog when I was a kid. Skin and flesh was just hanging off of my face and I almost lost my right eye.
Doctors did a great job patching me up and you can’t even tell that anything happened unless you know where the super subtle scars are.
Oh wow. They did great work then. My niece has her face attacked by a pit bull, has had several surgeries and some laser work, and you can still tell unfortunately. She kind of developed some transient anorexia about it unfortunately, which my asshole MIL went out of her way to aggravate. Glad you did well though.
I’m so sorry your niece went through that. I hope that she can find some peace and heal someday.
I think she’s much better now, thanks. Not thanks to the malignant narcissism of my MIL though. Ugh family.
Family can be the best and worst
I’m, in fact, not a horse. I only pretend to be one on the Internet.
Nice try Ed.
Wow. How fucking dare you? I trusted you.
I happen to own this shirt and have worn it to a couple of IRL meetups:
Because you’re a jackass? rimshot
This is America, 1971
After taking a car door to the head during heavy winds, I experienced immediate and recurring night terrors/sleep paralysis for two years. They started out pretty extreme, with me waking up on my stomach with some kind of creature pinning me to the bed. I’d struggle enough to lift my head a few inches, only to find my pillow was filled with distorted, open-mouthed faces stretching out at me from the material.
As time went in the hallucinations gradually waned in extremity, though never becoming anything comfortable. I would open my eyes to see a phosphorescent grid encompassing my walls, or millions of flies on my bedroom ceiling. Once my cat was staring up at them too, and I believed what was happening was real, only to wake up a moment later facing a different direction, and my cat fast asleep at my feet.
Eventually it’s as though my soul became heavy or something. I slept on the top floor of a two-story home, with a very old colonial-era basement below it. I would constantly find myself one or two floors directly beneath my bed, all but glued to the ground and trying with all my might to crawl out of the damp, dark cellar toward the stairs, but too sluggish and/or paralyzed to do it. I felt terrified down there in the darkness. Eventually the adrenaline would wake me up safely in my bed.
Throughout the entire ordeal I would somewhat frequently open my eyes to see some sort of ghostly or transparent entity looming over my bed, leaning over or staring down at me. The last night I ever experienced an episode, I woke up to see that very entity, but I realized suddenly that the entity was me. It was me standing there, looking down at myself. I became angry. I felt like these episodes had ruined my life, and made sleeping something I no longer looked forward to. The rage came to a head. I activated every nerve in my body to try to break free of the paralysis. I gritted my teeth as I succeeded, groaning the words “FFFFRUUUUCKK YYRRROOOOUU!!!” as I bolted up from my bed and lunged through my own ghost. Then I never saw it again. In fact, I never had another night terror since. It’s been years now. A decade at least.
I love your story. I overcome attempted nightmares in a very similar way.
I rarely get anything close to a nightmare nowadays, but I used to get dreams where someone/something would chase me. Then one night, I felt it was about to happen, and thought, “I’m so tired of this. You know what? I’m done.” And… the thing disappeared.
Ever since then, if any scary shit starts happening in a dream, I just tell it to fuck off. Sometimes that moment leads to a small bit of lucidity, and I go, “Oh hey, I can fly away.” Run, jump, take off, and it’s pleasant dreams from then on out.
The power of the mind is incredible.
I actually just had a moment like that (sudden lucidity during a dream) in my last sleep. Probably would have lost that memory entirely if this comment hadn’t reminded me. Even still, I can’t remember the context, just that something was happening that was mildly annoying and I realized I was dreaming.
I just said, “wait a minute, this is my dream, I’m in control here” and then I think the dream shifted into something else or something because the memory fragment ends there.
I grew up deeply religious. Mom used to cast demons out of the house when I was little, and that ain’t the half of it. Needless to say, I entered puberty with some fucked up perspectives. I started getting night terrors soon after I started masturbating, which was an accidental discovery of mine. The fact that I couldn’t stop freaked me out. I thought it was demonic and no way was I gonna talk to my parents about any of it.
Fortunately for me, I was always fascinated by science and sci-fi. I loved sharks, astronomy, history, and Star Trek. For middle school I attended private Christian school or home school, but for 9th grade I demanded to return to public school. My parents relented. The demonic night terrors still tormented me nearly every night, but one day I read an article about sleep paralysis in a science magazine in the school library. It explained everything I’d been going through for several awful years.
That same night I experienced another episode. I felt lucid enough to remember the article and realize what was happening. Instead of impotently begging Jesus again for help, this time I simply thought, “fascinating.” Then immediately woke up.
It has never happened to me since.
The people who fuck with libraries can all burn in hell. Libraries save lives, from exactly those same people.
That reminds me of the first time I did shrooms. I looked in the mirror and my head turned into a demon head. It made me laugh because I don’t believe in such things and I was aware I was on shrooms, but I bet it would have freaked a religious person out. I can definitely see why some religious people use psychedelics because they think it gets them in touch with the spirit world or whatever.
It’s weird, as soon as I became aware of my sleep paralysis I became able to control it and I’ve never had another either
I still experienced it after I knew what it was, but not nearly as often. The last time I remember it happening, I dreamed I was at work. Laid down in a hallway to nap. Woke up from the dream nap with one of the execs standing next to me, looking down his nose. Couldn’t move. “Hell of a time for sleep paralysis,” dream-me thought.
Then real me woke up with sleep paralysis. At work, with my head down on a conference table at 3am.
I do not miss those sensations.
Sleep paralysis is so terrifying. I get episodes when I’m under incredibly severe stress, so I’ve only had about 4 episodes. When it first happened, my heart was thumping so quick and fast that I thought I’d for sure have a heart attack.
I have always had hypnagogic dreams but no paralysis. The scary hallucinations only happened when I was stressed
Normally the hallucinations were benign
I used to be Mormon
I used to be jehovas witness. Hello cousin!
I used to be baptist. Hello fellow abuse victim.
I used to be catholic. I wasn’t abused, but I stopped going to church when I moved out.
I used to be an atheist. I still am but I also used to be.
Thanks Mitch 👍
You can’t use that word on lemmy.ml
You don’t have to be abused to still have a valid pride for removing yourself from the nonsense. Good for you!
I used to be a Jesus Freak. They were actually really nice.
Used to be seventh day Adventist. I hear jehovas witness branched out from that originally.
Heck yeah!! I used to know quite a bit about jw from the exjw subreddit but it’s been years since i frequented it. Now i just know there are a lot of similarities
As the child of Jack Mormons, I feel for you and hope you’ve found healing.
Thanks! I’m mostly healed these days. It’s been a over half a lifetime and I’m just glad I got out when i did. Hope the same for you and your family
I beat somebody into a coma with their own gun.